Discussing Neurogenic Orthostatic Hypotension (nOH) With Your Doctor

Sometimes it’s hard to speak up in an appointment, especially with a doctor you may not know well. Having an understanding of what a good dialogue looks like may help you have a productive discussion with your provider. Watch this video to hear Dr. Fahd Amjad, a movement disorder specialist, talk about the importance of an honest conversation between doctor and patient. Then, continue reading for tips from the nOH community about how to have a productive conversation with your doctor.

Here are some suggestions from others in the nOH community about how to have a productive conversation with your doctor:

Be your own advocate.

Don’t be afraid to ask a question more than once to make sure you understand the answer.

Be honest.

The more your doctor knows, the more he or she can help. Make sure to talk about everything you’ve been experiencing when it comes to your symptoms.

Know what you want to talk about at the appointment.

Go in with a list of things you want to be sure to talk about at every visit, such as:

  • Any changes in your symptoms
  • The information in your nOH tracker (your symptoms and blood pressure readings)
  • What is and isn’t working in your current management plan
  • Questions or concerns

Share this list with your doctor at the beginning of your appointment. Having it written down may make it easier to communicate your needs.

Bring someone with you.

A friend or care partner can take notes for you to help you remember everything your doctor has said. He or she can also provide support during your appointment.

Download and print this Doctor Discussion Guide to keep track of your questions and help you start the conversation at your next appointment. You can also learn more about an option to help manage the symptoms of nOH.