Your Health, Your Team. Be an Active Member of Your Care Team

If you’re living with neurogenic orthostatic hypotension (nOH) and a neurologic disorder, you may have a number of people on your healthcare team to help you manage your conditions:

  • a movement disorder specialist
  • a neurologist
  • a cardiologist
  • a primary care doctor
  • a physical therapist
  • an occupational therapist
  • a dietitian 
  • a social worker

As the most important member of your healthcare team, you can connect all your healthcare providers to produce the best management approach. Watch this video to hear Dr. Fahd Amjad, a movement disorder specialist, talk about the things you can do to work with your doctor and play an active role on your care team.

In addition to being a team player, it’s also important to be an advocate for yourself. Here are some tips on how to do so:

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Use a tracker.

Keep track of your blood pressure readings and nOH symptoms in between appointments, and be sure to share this information with your doctor.

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Communicate your questions and concerns.

Every symptom is important: Make sure your healthcare providers are aware of even the smallest changes. They can only help you with a problem if they know about it.

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Stick to the plan.

Follow your doctor’s instructions when it comes to your nOH management plan, and let him or her know if you have any questions. Don’t make any adjustments to your plan without talking to your doctor first.

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Set goals for yourself.

Work with your care team to set goals for your nOH symptom management.