Do I Have Symptoms of Neurogenic Orthostatic Hypotension (nOH)?

People with nOH symptoms have described what happens when they stand up as feeling like “sliding down a deep dark hole” or “having a dark cloud drop down on you."

They often assume their symptoms have to do with their underlying nervous system disorder and are just something they need to live with. They say they had no idea their symptoms were caused by a separate condition called nOH.

Symptom Checker

Use our Symptom Checker to see which symptoms of nOH you or a family member may be experiencing when standing or sitting up, and have a discussion with your healthcare provider.

1

Do you have any of the following conditions?

2

When you sit up, stand up, or are standing for long periods of time, which of the following symptoms do you have? Select all that apply.

3
How often do you have any of your symptoms when you stand up?
4
Do your symptoms improve when you lie down?
5
Have you ever fallen because of these symptoms?
6
What impact do your symptoms have on your ability to exercise?
7
What impact do your symptoms have on your ability to do your favorite activities (eg, golfing, gardening, cooking, attending social functions, etc)?
8

When you are experiencing symptoms often, how do you feel? Select all that apply.

Question 1 of
Multiple system atrophy

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly

Dopamine beta-hydroxylase deficiency

A rare disease that affects the autonomic nervous system. DBH is present at birth, but is not typically diagnosed until late childhood, and nearly all patients with DBH will have severe OH by their early adult years.

Autonomic nervous system

One part of the nervous system that helps regulate the many functions in the body that aren’t consciously controlled, including heart rate and blood pressure

Blood pressure

The force the blood has on the arteries. It has two numbers: top/bottom (systolic/diastolic)

Dementia with Lewy bodies

the second most common neurodegenerative dementia after Alzheimer's disease. Symptoms include progressive dementia; trouble remembering, learning, concentrating, or making decisions; visual hallucinations; and parkinsonism movement issues like tremor, impaired speech, or muscle stiffness.

Hypotension

Abnormally low blood pressure

Idiopathic

Arising from an unknown cause

Neurogenic

Associated with the nervous system

Parkinson’s disease

A nervous system disorder associated with damage to nerve cells in the brain and nerves that control movement and cause malfunction of involuntary bodily functions (such as blood pressure control)

Pure autonomic failure

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Norepinephrine

A neurotransmitter that functions to mobilize the brain and body for action

Orthostatic

Relating to standing up

MSA

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

PAF

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly