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nOH Champions is a program for people who want to share their story about living or caring for someone with symptoms of neurogenic orthostatic hypotension (nOH).

Living with nOH has given you a unique perspective on its symptoms, getting a diagnosis, and finding treatment.

As an nOH Champions ambassador you can:

  • Increase awareness about nOH and its symptoms
  • Help others navigate their nOH journey and gain the confidence and information they need to take an active role in their healthcare
  • Become part of a supportive community living with, caring for, and treating people with nOH

There are a number of ways ambassadors can participate, including telling their story in a variety of settings, such as at live meetings and in videos. There also are opportunities to share your insights in a more behind-the-scenes role.

If you or the person you care for has either Parkinson's disease or multiple system atrophy and experiences symptoms of nOH, consider becoming an nOH ChampionPlease note that to become an ambassador you must meet the program's criteria. As an ambassador, your participation will be tailored to your interests and the opportunities available within the program.

Multiple system atrophy

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly

Dopamine beta-hydroxylase deficiency

A rare disease that affects the autonomic nervous system. DBH is present at birth, but is not typically diagnosed until late childhood, and nearly all patients with DBH will have severe OH by their early adult years.

Autonomic nervous system

One part of the nervous system that helps regulate the many functions in the body that aren’t consciously controlled, including heart rate and blood pressure

Blood pressure

The force the blood has on the arteries. It has two numbers: top/bottom (systolic/diastolic)

Dementia with Lewy bodies

the second most common neurodegenerative dementia after Alzheimer's disease. Symptoms include progressive dementia; trouble remembering, learning, concentrating, or making decisions; visual hallucinations; and parkinsonism movement issues like tremor, impaired speech, or muscle stiffness.

Hypotension

Abnormally low blood pressure

Idiopathic

Arising from an unknown cause

Neurogenic

Associated with the nervous system

Parkinson’s disease

A nervous system disorder associated with damage to nerve cells in the brain and nerves that control movement and cause malfunction of involuntary bodily functions (such as blood pressure control)

Pure autonomic failure

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Norepinephrine

A neurotransmitter that functions to mobilize the brain and body for action

Orthostatic

Relating to standing up

MSA

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

PAF

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly