Living With Neurogenic Orthostatic Hypotension (nOH)

Living with neurogenic orthostatic hypotension (nOH) symptoms can be challenging. The simple act of standing up could bring on dizziness, blurry vision, or fainting. People with symptomatic nOH have said they feel like their worlds have become more limited because of their fear of fainting or falling.

The Day-to-Day Effects of nOH Can Be Significant

When not managed, symptomatic nOH can take an emotional toll on those who live with it. Watch this video to learn more.

Caring for a family member with nOH can be stressful, but a diagnosis and management plan from your doctor can lead to improvement. See what a diagnosis meant for Jody.

nOH puts people at risk of being lightheaded, dizzy, or falling, which may lead to injuries. Learn how to lessen the risk.

You’re not alone when your symptoms act up. Hear from others who have been there too.

Staying active is important to managing the symptoms of nOH. Hear Doug and Danny talk about their regular exercise routine.

Understanding the Symptoms

Use our Symptom Checker to see if you may have neurogenic orthostatic hypotension symptoms.

Download the symptomatic nOH brochure.

Multiple system atrophy

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly

Dopamine beta-hydroxylase deficiency

A rare disease that affects the autonomic nervous system. DBH is present at birth, but is not typically diagnosed until late childhood, and nearly all patients with DBH will have severe OH by their early adult years.

Autonomic nervous system

One part of the nervous system that helps regulate the many functions in the body that aren’t consciously controlled, including heart rate and blood pressure

Blood pressure

The force the blood has on the arteries. It has two numbers: top/bottom (systolic/diastolic)

Dementia with Lewy bodies

the second most common neurodegenerative dementia after Alzheimer's disease. Symptoms include progressive dementia; trouble remembering, learning, concentrating, or making decisions; visual hallucinations; and parkinsonism movement issues like tremor, impaired speech, or muscle stiffness.

Hypotension

Abnormally low blood pressure

Idiopathic

Arising from an unknown cause

Neurogenic

Associated with the nervous system

Parkinson’s disease

A nervous system disorder associated with damage to nerve cells in the brain and nerves that control movement and cause malfunction of involuntary bodily functions (such as blood pressure control)

Pure autonomic failure

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Norepinephrine

A neurotransmitter that functions to mobilize the brain and body for action

Orthostatic

Relating to standing up

MSA

A rare, Parkinson's-like neurological disorder that causes problems with movement, loss of coordination, and malfunction of involuntary bodily functions (such as blood pressure control)

PAF

A very rare, neurological disorder characterized by damage to regions of the nervous system that control involuntary functions (such as blood pressure control)

Autonomic dysfunction

Also known as dysautonomia. A term referring to conditions in which the autonomic nervous system does not function properly